Using a wheelchair every day is the easy part of having Duchenne. It’s the knowledge that my condition will keep getting worse that’s hard to handle. It’s not just about the wheelchair; even though we might appear fine on the outside, there’s a constant struggle happening within us. However, with a positive attitude, I can make anything seem easy. Sometimes, I might wake up one day and not be able to do something I used to enjoy, but that doesn’t mean I give up. I find ways to adapt and figure out a new approach, even though it might not be as easy or the same. Just when I’ve adjusted and become comfortable with my new routine, I lose another ability. Nevertheless, I keep fighting harder until there is a cure. While my muscles will keep getting weaker, I won’t give up or give in. It might be hard to believe, but I can still enjoy my life even though I know I’m getting weaker. Duchenne is undeniably unfair, but I use it to build my mental strength and willpower to continue fighting and finding happiness in what I have. If you think that using a wheelchair is the worst part, it’s not even on the list of challenges I face.
